Exploring patterns of advocacy and well-being of parents of children with intellectual and developmental disabilities
Title
Exploring patterns of advocacy and well-being of parents of children with intellectual and developmental disabilities
Description
Advocacy is often an expectation for parents of children with intellectual and developmental disabilities (IDD). However, little is known about how advocacy may impact parent well-being, including stress, family dynamics, and marital relationships. By exploring the effects of advocacy on well-being, interventions can be implemented to support both the advocacy and well-being of parents of children with IDD. To this end, the purpose of the study was to explore the pattern between positive and negative advocacy experiences of parents of children with IDD and the well-being of parents, families, and marriages. Semi-structured interviews were conducted with 38 parents of children with IDD. Regardless of the nature (i.e., positive, or negative) of the advocacy experience, participants reported that advocacy increased their stress. When the advocacy experience was positive, some participants reported improved family quality of life. Also, regardless of the nature of the advocacy experience, some participants reported feeling frustration within their marital relationships. Implications for future research and practice are discussed.
College or School
Format
article
Publisher info
Citation Info
Rios, K., Aleman-Tovar, J., & Burke, M. (2021). Exploring patterns of advocacy and well-being of parents of children with intellectual and developmental disabilities. Intellectual and Developmental Disabilities, 59(6), 459–471. https://doi.org/10.1352/1934-9556-59.6.459
UN Sustainable Development Goal
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Collection
Citation
“Exploring patterns of advocacy and well-being of parents of children with intellectual and developmental disabilities,” Outstanding Faculty Publications, accessed November 21, 2024, https://facpub.library.fresnostate.edu/items/show/380.